Alzheimer’s disease, inclusion and caring (part 1)

Rich in inspiring examples, advice and practical sheets useful for the development of an inclusive project for and with people living with Alzheimer’s disease, it was conceived as a concrete tool in response to the challenges of inclusion raised by Alzheimer’s disease.

Resulting from the collective’s first territorial meeting in Nice which was held on September 9, 2019, it is the result of multidisciplinary expertise. It was designed as a simple methodological guide to encourage all day-to-day stakeholders, beyond Alzheimer’s disease professionals, to adapt their activities to the needs of people living with this disease.

Shopping, taking transport, going to museums, to the cinema, to practicing a sporting activity… it is a question of allowing these citizens to live their daily life with more autonomy and without stigmatization.

In total, five key stages are illustrated by testimonials from project leaders who mark out the course of an inclusive project: from the involvement of sick people to the identification of evaluation criteria at the start of the project. , through the benefit of an expert eye, the search for funding and the advantages of advance communication.

« The collective is convinced that the attention paid to people living with Alzheimer’s disease and to their families is not only the responsibility of specialists but must irrigate all areas of society. We have set ourselves the goal of raising awareness among all those involved in daily life by giving them the desire, through this new practical guide, to take part in a better informed, benevolent, welcoming and rewarding society with regard to people living with Alzheimer’s disease »Declares on this subject Hélène Jacquemont, President of the Médéric Alzheimer Foundation, member
founder of the Alzheimer Ensemble collective.

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Remember that an inclusive society is a caring and welcoming society towards sick people. Its objectives are to support their rights and freedoms but also to preserve their quality of life, their well-being and their security while involving them in decisions that affect them.

People living with Alzheimer’s disease (more than 900,000 in France) retain their capacities
functional and relational (or social) despite the illness, but it is essential that these capacities be supported by an appropriate organization of society.

« The commitment of cities is essential in this process of inclusion of people living with Alzheimer’s disease and their families. It is, in fact, at the level of the city, a space which concentrates most of the services, shops and transport on a territory, that we must act as a priority. »Continues Joël Jaouen, President of France Alzheimer and related diseases.

Transport, shops, housing, sports and cultural activities: 5 priority areas for
building an inclusive society

An inclusive society can begin with an inclusive neighborhood in which people living with Alzheimer’s disease can shop with peace of mind by being welcomed and served by merchants who are aware of their needs.

It is a city where sick people take public transport independently, without the risk of getting lost and without this journey worrying their families. It is a city in which people live in suitable and open accommodation, a city that allows them to continue to practice the activities they love, to maintain their shape through sport, to indulge in an artistic activity or to visit. places of culture.

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By drawing on the testimonies of those who are already involved in the process, by highlighting the main lines of the construction method of an inclusive project while providing practical sheets, the guide not only The aim is to arouse envy but also to give the keys to act.

* initiated by the Médéric Alzheimer Foundation in 2019 and bringing together Agirc-Arrco, the Assembly of Departments of France, France Alzheimer, the Mutualité Française, the SFGG and the UNAF.

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