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Tag: rare diseases

Queen Letizia attends the commemorative event for “World Rare Disease Day”
 – 2024-03-06 23:35:12
News

Queen Letizia attends the commemorative event for “World Rare Disease Day” – 2024-03-06 23:35:12

You can read the full story here: Queen Letizia attends the commemorative event for “World Rare Disease Day”
– 2024-03-06 23:35:12
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Saul Martinez collaborator @DiarioCoLatino 25 years after its founding, the Spanish Federation of Rare Diseases (FEDER) pointed out that research is its maximum contribution to the identification of new pathologies throughout Europe, but especially in the province of Seville. FEDER indicated that years ago, many diseases such as Amyotrophic Lateral Sclerosis, Prader Willi Syndrome, Marfan … Read more

“Amniotic Fluid Cells Used to Create Organoids for Fetal Disease Research”
Health

“Amniotic Fluid Cells Used to Create Organoids for Fetal Disease Research”

  1. Organoids grown from amniotic fluid could shed light on rare diseases  Nature.com
  2. Scientists grow ‘mini-organs’ from cells shed by foetuses in womb  The Guardian
  3. Organoids grown from late-stage foetuses offer boost for prenatal medicine  Financial Times
  4. Organoids made from uterus fluid may help treat fetuses before birth  New Scientist
  5. Scientists have used cells from fluid drawn during pregnancy to grow mini lungs and other organs  The Associated Press

You can read the full story here: “Amniotic Fluid Cells Used to Create Organoids for Fetal Disease Research” .

Rare Disease Day February 29, 2024: Pro Rare Austria calls for Austria-wide registers for rare diseases and a data room
 – 2024-03-02 10:37:37
Health

Rare Disease Day February 29, 2024: Pro Rare Austria calls for Austria-wide registers for rare diseases and a data room – 2024-03-02 10:37:37

The post Rare Disease Day February 29, 2024: Pro Rare Austria calls for Austria-wide registers for rare diseases and a data room
– 2024-03-02 10:37:37
appeared first on Worldys News.
Vienna (OTS) – 96 percent of people with rare diseases would make their data available for research (EURORDIS Rare Barometer) Austrian data space would be necessary for the implementation of…

Rating board in Austria: Concerns about access to innovative therapies for rare diseases
 – 2024-03-02 00:50:41
Health

Rating board in Austria: Concerns about access to innovative therapies for rare diseases – 2024-03-02 00:50:41

The post Rating board in Austria: Concerns about access to innovative therapies for rare diseases
– 2024-03-02 00:50:41
appeared first on Worldys News.
Time delays, a lack of specialist expertise and funding endanger treatments for those affected by rare diseases. Integration of expertise centers necessary. When making therapy recommendations in specific areas such…

It is no longer difficult to seek medical treatment for rare diseases. Four famous doctors in the country and 11 public hospitals are opening free clinics on Alipay–Quick Technology–Technology changes the future.
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It is no longer difficult to seek medical treatment for rare diseases. Four famous doctors in the country and 11 public hospitals are opening free clinics on Alipay–Quick Technology–Technology changes the future.

The post It is no longer difficult to seek medical treatment for rare diseases. Four famous doctors in the country and 11 public hospitals are opening free clinics on Alipay–Quick Technology–Technology changes the future. appeared first on Breaking Latest News.
Free Clinics for Rare Diseases Offered by Famous Doctors and Public Hospitals on Alipay In celebration of…