Brooke Eby, a social media creator and advocate who used wit and candor to chronicle her life with amyotrophic lateral sclerosis, has died at age 37 from complications of the terminal disease. Her posts on TikTok and Instagram reached millions of followers and raised over $1 million for research.
Eby Documents ALS Journey After 2022 Diagnosis
Eby was diagnosed with amyotrophic lateral sclerosis in March 2022 at age 33. She had spent years facing unexplained symptoms that doctors initially struggled to pinpoint. Better known by her online handle LimpBroozkit, she shared her daily reality with the progressive neurodegenerative disorder on TikTok and Instagram, mixing medical updates with dry humor about wheelchairs and dating while disabled. The ALS Network announced her death, noting she offered an unfiltered window into a terminal diagnosis.
Eby spent four years seeking answers after first noticing calf tightness at age 29 while living in New York City. She began walking unusually slowly and developed a limp she initially blamed on a workout. In a TikTok video titled How I Got A Death Sentence Before My 30th Birthday
, she stated she thought she just pilated too close to the sun.
Doctors at one point considered polio. ALS was raised about two years into her diagnostic journey.
Her approach to sharing changed at a friend’s wedding, where she arrived using a walker identical to the bride’s grandmother’s. Eby gave guests rides on her walker across the dance floor. That evening prompted a personal rule to live life in dog years
and make every year count for seven.
Eby Raises $1 Million via ALStogether
Target ALS stated in July 2025 that Eby had raised more than $1 million US for medical research. She also shared her journey with the Today show, The New York Times, and People magazine, where she wrote an essay in 2025 reflecting on her visibility at a younger age.
In 2026, the ALS Network began integrating ALStogether into its organization to expand its reach. Eby gave an acceptance speech for an award in June 2026 and was named an ALS Hero by the ALS Association in 2024.
I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon!
Brooke Eby, Advocate
Public Figures Honor Eby’s Legacy
Salesforce co-founder and CEO Marc Benioff posted on X describing Eby as an amazing warrior with an attitude positive enough to melt a glacier. Calaneet Balas, president and CEO of the ALS Association, noted she made the disease impossible to ignore while bringing her employer, Salesforce, into the fight against the illness. Sheri Strahl, president and CEO of the ALS Network, praised her for bringing humor into difficult moments and changing how patients find support.
Eby utilized voice banking technology powered by artificial intelligence to recreate her voice as the disease affected her ability to speak. She lived in North Bethesda, Maryland, in the Washington, D.C. area, and graduated from Winston Churchill High School in Potomac and Lehigh University in Pennsylvania. She is survived by her parents, Cliff and Ginny.
The fatal condition attacks nerve cells in the brain and spinal cord. As Eby once said, I didn’t choose ALS, but I did choose to get loud, and be irreverent about it, so don’t worry, I’m not getting quiet anytime soon!
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