The Hidden Crisis: Why Americans Are in Denial About Elder Care

by Chief Editor

Most Americans rely on family and friends for long-term care as they age, a reality that persists even in countries with robust public systems. According to a 2023 working paper from the National Bureau of Economic Research, the Netherlands spends 4.1 percent of its GDP on elder care—the highest per capita investment globally—yet nearly half of its elderly population still relies on informal support from kin. This data confirms that formal care is a supplement to, rather than a replacement for, the essential role played by family networks.

Why do most Americans rely on family for elder care?

The reliance on family for elder care is driven by both cultural preference and the logistical limits of formal systems. Over 80 percent of Americans aged 65 and older who need assistance depend on kin, with two-thirds relying exclusively on unpaid care, according to data cited by the National Bureau of Economic Research. Emily Kenway, author of Who Cares: The Hidden Crisis of Caregiving, notes that formal services often struggle to match the volatile, daily needs of an aging individual, such as help with grocery shopping, medication management, or basic mobility.

Did you know?
The common assumption that most elderly Americans live in nursing homes is a myth. Boston University sociologist Deborah Carr reports that the actual percentage of older adults residing in nursing facilities is very small, reinforcing that family involvement remains the primary pillar of care.

How does geography impact the availability of care?

Physical proximity remains the most significant predictor of whether an aging parent receives support from their children. Research by Hwajung Choi, an associate professor at the University of Michigan, indicates that the volume of care provided drops sharply once a child lives more than a few miles away. Those living under the same roof provide twice as many hours of care as those living on the same block, and children living beyond five miles provide negligible amounts of direct, hands-on assistance. This “distance decay” in caregiving creates a structural crisis as families become more geographically dispersed.

How does geography impact the availability of care?

What are the consequences of the “Caregiving Gap”?

The rising number of Americans without spouses or children, combined with the professional demands on those who do have family, creates a widening gap in elder support. By 2050, the proportion of older adults with unmet daily care needs is projected to rise by more than 30 percent. Susan Fordham, who manages care for her 84-year-old mother, highlights that even when formal insurance is available, the unpredictable nature of health crises—such as a sudden fall or a follow-up medical appointment—requires a family member to act as a “team boss” to coordinate logistics, insurance, and daily tasks that formal providers cannot manage.

Interview with Emily Kenway, author of the book "Who Cares"

Proactive planning for aging

Experts suggest that individuals must begin building “alterkin”—or alternative kinship circles—long before care needs arise. Psychotherapist Jody Day advocates for community-of-care models where friends and neighbors formalize commitments to support one another. This approach mirrors the “chosen family” structures historically developed within LGBTQ communities, emphasizing that in an era of digital isolation, building durable, reciprocal relationships is a necessary strategy for future security.

Pro Tip:
Review your local zoning laws. In states like Massachusetts, “granny flats” or accessory dwelling units (ADUs) are increasingly permitted by right, offering a practical way to keep aging relatives close while maintaining independent living arrangements.

Frequently Asked Questions

Is it possible to avoid relying on family for elder care?

While public and private formal care services exist, they are generally designed to complement rather than replace family support. Even in highly subsidized systems like the Netherlands, the majority of care remains informal.

Frequently Asked Questions

Why is it difficult for families to plan for elder care?

Planning for old age requires confronting mortality and vulnerability, which many find psychologically challenging. Furthermore, many families underestimate the intensity and volatility of the care required until a health crisis forces them into the role.

What is an “alterkin” network?

An alterkin network is a community-based model where individuals—often those aging without children—form a mutual aid agreement to look after one another. This involves shared commitments to provide support during times of illness or frailty.


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