May Lunde, who has lived with pulmonary fibrosis since 1994, is speaking out about the rapid and unpredictable nature of the disease. After losing both her mother and brother to the condition, Lunde has navigated her own diagnosis, a double lung transplant in 2005, and the ongoing challenges of managing 34 percent lung capacity. Her story highlights the severe physical and mental toll of the illness, as well as the importance of strong support systems during long-term rehabilitation.
The Genetic Impact of Pulmonary Fibrosis
For May Lunde, pulmonary fibrosis is a family tragedy. She explains that it is rare for an entire family to receive the same diagnosis, but in their case, it was genetic. Her mother died at age 35 while waiting for a transplant, and her brother passed away in 1995 just three weeks after his own transplant due to an infection. Lunde herself was placed on a waiting list 10 years after her 1994 diagnosis, eventually receiving a life-saving transplant in 2005.
May Lunde spent five and a half months on the transplant waiting list before receiving the call from Rikshospitalet that a donor had been found.
The Intersection of Mental Health and Physical Recovery
Lunde emphasizes that the psychological impact of the disease is significant. Following a difficult divorce in 2001 and the loss of her youngest daughter, she noted that her respiratory health began to deteriorate rapidly. She describes the recovery process as demanding, noting that she spent six weeks in the hospital post-surgery. Today, Lunde relies on immunosuppressive medication and regular rehabilitation on Røros to maintain her current level of health.
Lunde’s experience underscores the critical, often overlooked role that social support and mental well-being play in the outcomes of chronic illness. Her journey illustrates that physical recovery from major surgery, such as a lung transplant, is only one component of a lifelong process that requires consistent medical adherence and emotional stability.
Public Scrutiny and Personal Experience
Drawing parallels to the public pressure faced by Crown Princess Mette-Marit, Lunde advocates for empathy toward those suffering from chronic conditions. She recalls being labeled “lazy” by others when she was unable to perform daily tasks due to her illness. Lunde expresses sympathy for the Crown Princess, noting that the external scrutiny of her health has been unfair and that she admires the Princess’s strength in the face of public criticism.
Frequently Asked Questions
What is the primary factor that influenced May Lunde’s health decline?
According to Lunde, both the progression of the pulmonary fibrosis and the psychological strain from her divorce and personal losses contributed to a rapid decline in her lung capacity.
What happened when Lunde received her transplant surgery?
Lunde was operated on at Rikshospitalet by the same surgeon who had treated her brother ten years earlier. Upon waking from the procedure, she was unable to speak but wrote a note stating she had “won the lottery.”
How does Lunde manage her health today?
Lunde currently lives with 34 percent lung capacity. She requires lifelong immunosuppressive medication, is on disability, and attends regular rehabilitation sessions to manage her condition.
How do you think increased public awareness of invisible chronic illnesses could change the way we support those living with them?
