World-first centre launched in Sydney to help cancer survivors thrive beyond treatment

A New Dawn for Cancer Care: Australia Leads the Way in Survivorship Research

Australia has ushered in a new era of cancer care with the launch of the world’s first dedicated research centre for cancer survivorship – the Australian Research Centre for Cancer Survivorship (ARCCS). A $40 million partnership between UNSW Sydney and Cancer Council NSW, the centre signifies a pivotal shift in focus from solely treating the disease to comprehensively supporting life after cancer.

The Growing Need for Survivorship Care

With over 1.6 million Australians currently living with or beyond a cancer diagnosis, the need for specialized survivorship care is more critical than ever. Advances in treatment mean more people are surviving cancer, but this also means a growing population facing long-term physical, psychological, social, and financial challenges. The ARCCS aims to address these often-overlooked consequences.

Personalized Support: The Core of the ARCCS Mission

ARCCS Director Professor Bogda Koczwara AM emphasizes that survivorship often comes at a cost. While cancer is no longer a guaranteed death sentence for many, survivors frequently struggle to manage the lasting effects of treatment and the disease itself. The centre’s core mission is to ensure every survivor receives personalized, ongoing support to adapt, recover, and flourish. This includes addressing not just physical health, but also emotional wellbeing and financial stability.

A Holistic, Person-Centred Approach

The ARCCS will adopt a holistic, person-centred approach, examining survivorship within the context of an individual’s broader life and health circumstances. In other words moving beyond simply eliminating the disease to understanding and addressing the complex needs of each survivor. Professor Koczwara stresses the importance of creating a system where personalized care is the standard, not the exception.

Reshaping Health Systems for Long-Term Wellbeing

The centre’s research will be instrumental in reshaping health systems to prioritize long-term wellbeing for cancer survivors. Collaboration with survivors, carers, healthcare providers, and industry partners will be key to designing and implementing new models of care that can be integrated across the Australian health system. A particular focus will be placed on improving access to care for those in regional and rural communities.

Beyond Treatment: Prioritizing Humanity in Cancer Care

UNSW Professor Phoebe Phillips AM, a cancer survivor and carer, highlights a critical need for change within the current system. She points out that efficiency often takes precedence over humanity, with patients sometimes feeling rushed through treatment without adequate attention to their overall wellbeing. A simple question – “How do you feel today?” – can produce a significant difference, yet is often overlooked.

Future Trends in Cancer Survivorship Care

The Rise of Digital Health Solutions

As the number of cancer survivors grows, digital health solutions will play an increasingly important role in providing accessible and personalized care. Telehealth, remote monitoring, and mobile apps can help survivors manage symptoms, track their progress, and connect with support networks from the comfort of their homes.

Integrating Survivorship Care into Primary Care

A key trend will be the integration of survivorship care into primary care settings. Equipping GPs and other primary care providers with the knowledge and resources to address the unique needs of cancer survivors will be crucial for ensuring continuity of care and early detection of late effects.

Focus on Financial Toxicity

The financial burden of cancer treatment and survivorship is a growing concern. Future research and interventions will focus on mitigating “financial toxicity” – the negative impact of cancer-related costs on a survivor’s financial wellbeing – through financial counseling, advocacy, and policy changes.

The Importance of Peer Support

Peer support programs, where survivors connect with others who have shared experiences, will continue to be a vital component of comprehensive survivorship care. These programs provide emotional support, practical advice, and a sense of community.

Frequently Asked Questions

What is cancer survivorship? Cancer survivorship encompasses the entire experience of living with and beyond a cancer diagnosis, from the time of diagnosis through the rest of life.

Why is survivorship care important? Survivorship care addresses the long-term physical, psychological, social, and financial challenges faced by cancer survivors, helping them to live full and meaningful lives.

Who is eligible for survivorship care? Anyone who has been diagnosed with cancer is eligible for survivorship care, regardless of their stage of disease or treatment status.

Where can I find more information about cancer survivorship? You can find more information from Cancer Council NSW and UNSW Sydney.

Did you know? More than 60% of cancer survivors experience long-term side effects from treatment.

Pro Tip: Don’t hesitate to inquire your healthcare team about survivorship care planning. It’s an essential part of your ongoing health management.

Learn more about cancer research and support by visiting the Cancer Council Australia website.

Do you have questions about cancer survivorship? Share your thoughts in the comments below!

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