Tauranga woman with myotonic muscular dystrophy seeks help to fund mobility van modifications

by Rachel Morgan News Editor

For Michelle Wilson of Gate Pā, maintaining independence and a routine of doctor’s appointments, shopping, and church services is becoming increasingly difficult. Wilson relies on a power chair for mobility, but securing it safely within her adapted van requires physical strength her mother, Lynn Phillips, no longer possesses due to arthritis.

Challenges to Independence

Wilson’s condition has led to declining health, with only 20% lung capacity and a reliance on morphine for breathing. Simple tasks, like using the bathroom, are significantly challenging. Phillips has recently had to secure Wilson’s chair six times during a single outing to Bethlehem and Tauriko, a physically straining process that left her with severe back pain. Ambulances have been called to Wilson’s independent disability unit twice in the past three weeks due to medical issues.

Did You Know? Michelle Wilson’s family has a history of the condition affecting her mobility, with her grandmother, father, uncle, and cousin all experiencing the same illness.

Wilson previously used a car, but transferring became too difficult. The current process of manually securing her power chair with seatbelt straps and hooks inside the mobility van is now unsustainable. “It’s confining me to my house, and I don’t want to be stuck in a box,” Wilson stated.

Seeking a Solution

The solution lies in an automatic locking system – the EZ Lock Docking System – which would secure Wilson’s chair automatically after it is lifted into the van by her accessibility hoist. The system costs between $2000 and $5000. However, funding from Lotto, which initially helped provide the mobility van, is only available every seven years, and Wilson received her van three years ago, meaning she must wait another four years to reapply.

Expert Insight: The situation highlights the ongoing financial burden faced by individuals with disabilities requiring specialized equipment. Limited funding cycles can create significant delays in accessing necessary modifications, directly impacting quality of life and independence.

To overcome this barrier, Wilson and Phillips have launched a Givealittle page to raise the funds needed for the EZ Lock Docking System. “We don’t want to wait three or six months. We want Michelle to enjoy life now, while she can,” Phillips said.

Frequently Asked Questions

What is preventing Michelle Wilson from easily using her mobility van?

Wilson’s mother, Lynn Phillips, previously secured the power chair in the van, but arthritis now prevents her from performing the physically demanding task.

How much does the EZ Lock Docking System cost?

The EZ Lock Docking System costs between $2000 and $5000.

Why can’t Wilson access funding through Lotto immediately?

Lotto funding for mobility equipment is only available every seven years, and Wilson received her van three years ago, meaning she must wait another four years before reapplying.

As Wilson and her mother navigate this challenge, one wonders what level of community support will be needed to ensure Michelle can continue to participate fully in life.

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